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A lifesaving therapy for children with a rare disease is now the world’s most expensive drug, raising questions about access

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A lifesaving therapy for children with a rare disease is now the world’s most expensive drug, raising questions about access


A new gene therapy for the fatal genetic disorder metachromatic leukodystrophy, or MLD, will carry a wholesale price of $4.25 million, its manufacturer announced Wednesday, making it the world’s most expensive medicine. Lenmeldy was approved by the US Food and Drug Administration on Monday and is…

#mld #lenmeldy #medicaid #bobbygaspar #orchardtherapeutics #kendrariley #phoenix #fda #riley #olivia

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