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Social Security At It Again...

Tripster

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I won't go into too much details but the SSA has fucked me over yet again...they have been altering my income from the beginning and they're the sole reason I become homeless so often. Before anyone posts remarks about me being on welfare, I have a lifetime of Medical Documents to prove that I am pretty much completely disabled and unable to do a 9-5 job. I am having an insane anxiety attack right now which is exaggerating my extremely rare medical condition which is causing me to overheat and completely breakout in hives from head to toe with prickly heat sensation (can become fatal) but don't worry cause it's not like there is a cure or treatment for cholinergic urticaria with acquired generalized hypohidrosis. I think it's time to start a lawsuit against SSA for severe emotional distress since my lively hood is completely dependent on SSA otherwise I would be homeless without a cent to my name.

If I see any negative posts about me being a welfare whore or whatever, I will report your post...leave your political correctness out of my thread, I am merely ranting since my only source of income is being altered with since I was 20. There has never been a complete year where I received a consistent amount of income.

I must go now and rapidly cool myself down before I start to experience seizures due to overheating and to calm down the hives/prickly heat sensation.
 

misswish

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I am so sorry this is happening again. Yes, SSI is so unorganized, 10 people will give you 10 different answers. Please stay safe, let us know what happens.
 

Celtic Fog

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Do your best to stay calm my friend. I'm sorry you are having to deal with both issues in your life. I'm here for you if you need to vent or ever want to talk it out bro. I've seen so many injustices in my world when it comes to government, I can understand your frustration. We are family here, no judging.
 

Tripster

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I am so sorry this is happening again. Yes, SSI is so unorganized, 10 people will give you 10 different answers. Please stay safe, let us know what happens.

I am grateful that I am not renting alone finally or my rent would be $600+ utilities which I would not be able to afford food and the like, people ask me why do I become homeless so often...well, when the only income you get is a single monthly check and that income keeps changing plus living in poverty, well it should speak for itself. What is someone like myself to do, get a job...I can't due to my medical conditions. For 9 years I have been put through so much shit from SSA that majority of the people couldn't even comprehend the severity of the intense emotional distress I am goin through. Every month for me is absolute anxiety knowing that my income will become altered simply based off of this thing people call "Free Healthcare." Healthcare Insurance is the main reason this is happening, it is confusing me.
 

Tripster

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Do your best to stay calm my friend. I'm sorry you are having to deal with both issues in your life. I'm here for you if you need to vent or ever want to talk it out bro. I've seen so many injustices in my world when it comes to government, I can understand your frustration. We are family here, no judging.

I see our world where Humanity doesn't exist, I have never pan handled nor attempted to gain money while I have been homeless on/off for nearly 12 years. I have been escorted out of countless SSA buildings cause I get rightfully upset since RSDI is my and will be my only form of income. Some people don't understand cause they have and never will be in my position, I don't understand this shit anymore. The SSA has gone from $350-$1,005 for my income, it literally changes multiple times a year and if you're in a signed year lease...you are fucked and the SSA will not correct their mistakes or wrong doings. I wish I was never born the way I was and injured so many times, fuckin depressed and meds can't help depression if the depression is caused by inconsistency with my income plus I don't have "free" healthcare, I get massive co-payments and or a pay $400 a month to cover my insurance shit.

I am goin to drink myself stupid.

Much appreciated, CF!
 

jae

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I see our world where Humanity doesn't exist, I have never pan handled nor attempted to gain money while I have been homeless on/off for nearly 12 years. I have been escorted out of countless SSA buildings cause I get rightfully upset since RSDI is my and will be my only form of income. Some people don't understand cause they have and never will be in my position, I don't understand this shit anymore. The SSA has gone from $350-$1,005 for my income, it literally changes multiple times a year and if you're in a signed year lease...you are fucked and the SSA will not correct their mistakes or wrong doings. I wish I was never born the way I was and injured so many times, fuckin depressed and meds can't help depression if the depression is caused by inconsistency with my income plus I don't have "free" healthcare, I get massive co-payments and or a pay $400 a month to cover my insurance shit.

I am goin to drink myself stupid.

Much appreciated, CF!
Don't drink, that's only going to make you feel worse. I wish i could help.

Is there something you can do to make your own income independently? Some sort of creative pursuit you could use to put yourself in touch with sponsors, patrons, or clients? If so, maybe something like Patreon could help to cover some part of your financial shortfalls. Even just producing short, entertaining and/or informative videos weekly about a particular topic about which you're more knowledgeable than others... everyone is an expert at something, to one degree or another.

Just throwing out ideas. I hope something, anything, works out for you.
 

Tripster

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Don't drink, that's only going to make you feel worse. I wish i could help.

Is there something you can do to make your own income independently? Some sort of creative pursuit you could use to put yourself in touch with sponsors, patrons, or clients? If so, maybe something like Patreon could help to cover some part of your financial shortfalls. Even just producing short, entertaining and/or informative videos weekly about a particular topic about which you're more knowledgeable than others... everyone is an expert at something, to one degree or another.

Just throwing out ideas. I hope something, anything, works out for you.

cholinergic urticaria with acquired generalized hypohidrosis severely limits me in life, the ever so slightest emotional stimulate can become fatal for me. If I get excited, nervous, defensive, and the like...I will begin to instantaneously go into prickly heat sensation followed by hives followed by overheating. I can't nor should I perform any manual labor nor shall I enjoy raw human emotions. If I were to get a job, the SSA would revoke my benefits completely and trust me, even if I were to get paid under the table with cash, they would now. I am not suppose to drink cause of my seizures but I am going through a struggle in which majority wouldn't have lasted this long. I can't enjoy the sun, heat, humidity, temperature changes, emotional stimuli, adrenaline, and life in general. Ever since Sept of 2009, my quality of life is nothing cause an asshole decided to hit me which partially collapsed my sweat gland thingy in my brain. I am partially able to sweat but for the first 3 years after the accident I was completely unable to sweat which got scary but I can partially sweat now but still nothing near the ability to regulate my core/body temp. I have looked into building computers and selling them but to expensive based on my income. I have been searching high and low but no go, companies insurance will not take me cause of liability and costly medical bills...in fact, I am being hounded by hospitals and clinics and debt collectors as I type this...how am I going to live paying off debts, healthcare spend downs, co-payments, rent, utilities, food, clothing, toiletries, and the like with an income below the poverty line. People tell me to save my money...how the fuck does someone with a yearly income between $7200-$10788 save money?

If I begin to cry and or show any emotion, I will go through a suffering like non other.

Thanks, Jeremy. :)
 

Tripster

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I am goin to log off now before I get myself in trouble, peace!
 

UncleRJ

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I wish you only the best.

Any chance of a Pro-Bono attorney taking up you case to deal with these asshats on your behalf?
 

Tripster

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I wish you only the best.

Any chance of a Pro-Bono attorney taking up you case to deal with these asshats on your behalf?

I am lookin for one in Columbia, MO.
 

UncleRJ

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I am lookin for one in Columbia, MO.

I wish you only the best.

Keep Frosty (for obvious reasons) my friend.

And for those of you that do not know what Hives feel like............

Kinda like ants nibbling on your nerve endings.

Not fun. Not fun at all!
 

Spike64

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Before anyone posts remarks about me being on welfare, I have a lifetime of Medical Documents to prove that I am pretty much completely disabled and unable to do a 9-5 job.

If I see any negative posts about me being a welfare whore or whatever, I will report your post...leave your political correctness out of my thread, I am merely ranting since my only source of income is being altered with since I was 20. There has never been a complete year where I received a consistent amount of income.

I don't blame you...pisses me off when I see people foolishly compare folks on Social Security Disability to people collecting welfare....I'm not on Social Security, but know many who are because of their disabilities....working people are literally forced to pay into Social Security every time they collect a paycheck...I see it as an insurance policy that you have no choice as to carry and pay the premiums for that will be cashed in if the need exists and you meet the criteria for collecting it...looking at it any other way doesn't make any sense...

I'm sorry to hear about your condition and circumstances...I hope things get better for you....
 

m3rma1d

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cholinergic urticaria with acquired generalized hypohidrosis severely limits me in life, the ever so slightest emotional stimulate can become fatal for me. If I get excited, nervous, defensive, and the like...I will begin to instantaneously go into prickly heat sensation followed by hives followed by overheating. I can't nor should I perform any manual labor nor shall I enjoy raw human emotions. If I were to get a job, the SSA would revoke my benefits completely and trust me, even if I were to get paid under the table with cash, they would now. I am not suppose to drink cause of my seizures but I am going through a struggle in which majority wouldn't have lasted this long. I can't enjoy the sun, heat, humidity, temperature changes, emotional stimuli, adrenaline, and life in general. Ever since Sept of 2009, my quality of life is nothing cause an asshole decided to hit me which partially collapsed my sweat gland thingy in my brain. I am partially able to sweat but for the first 3 years after the accident I was completely unable to sweat which got scary but I can partially sweat now but still nothing near the ability to regulate my core/body temp. I have looked into building computers and selling them but to expensive based on my income. I have been searching high and low but no go, companies insurance will not take me cause of liability and costly medical bills...in fact, I am being hounded by hospitals and clinics and debt collectors as I type this...how am I going to live paying off debts, healthcare spend downs, co-payments, rent, utilities, food, clothing, toiletries, and the like with an income below the poverty line. People tell me to save my money...how the fuck does someone with a yearly income between $7200-$10788 save money?

If I begin to cry and or show any emotion, I will go through a suffering like non other.

Thanks, Jeremy. :)
Should you want to look a bit further into it, people on SSI and SSDI *can* earn a certain amount of money each month *without* effecting benefits. Jussayin'.

You're a good enough writer, you could easily make a blog about your medical conditions and struggles, or vaping, a friggen TV show you like, or all of the above, toss on some Google ads, make a few extra bucks a month.

Definitely don't drink tonight. Booze isn't free. Not to mention in your situation, not the answer. Save your money for things you actually need.

<3
 

Whiskey

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Ditto Cherry, Big hugs out to you Trip!!

tumblr_mvdxkjAmRq1rkrgxgo1_500_zpsb82afda8.gif
 

MrScaryZ

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I won't go into too much details but the SSA has fucked me over yet again...they have been altering my income from the beginning and they're the sole reason I become homeless so often. Before anyone posts remarks about me being on welfare, I have a lifetime of Medical Documents to prove that I am pretty much completely disabled and unable to do a 9-5 job. I am having an insane anxiety attack right now which is exaggerating my extremely rare medical condition which is causing me to overheat and completely breakout in hives from head to toe with prickly heat sensation (can become fatal) but don't worry cause it's not like there is a cure or treatment for cholinergic urticaria with acquired generalized hypohidrosis. I think it's time to start a lawsuit against SSA for severe emotional distress since my lively hood is completely dependent on SSA otherwise I would be homeless without a cent to my name.

If I see any negative posts about me being a welfare whore or whatever, I will report your post...leave your political correctness out of my thread, I am merely ranting since my only source of income is being altered with since I was 20. There has never been a complete year where I received a consistent amount of income.

I must go now and rapidly cool myself down before I start to experience seizures due to overheating and to calm down the hives/prickly heat sensation.
Wish you the best man I understand my Sister is on SSI and its a nighmare Godspeed
 

Zombiewoof

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Dude...I don't know what too say. If there was something I could say or do that would make you feel better, I'd do it right fucking now. I hope that somehow, someway you find your peace, truly. I know that it sounds sappy to some people and some people will look down on it, but pray hard. I have gone through some really life shattering experiences of my own and prayer can work wonders. It ain't money in the bank, but the soul needs rest sometimes and it can't hurt.
 

Tripster

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These are early breakouts vs fatal ones which get the size of quarters-silver dollars...hives aka wheels. When the hives get larger, I am basically going into anaphylaxis/seizures and high probability of death cause my body is desperately attempting to drastically cool itself down but can't unless I am near an AC unit, Ice Cold Shower and or a large Stainless Steel Bathtub full of Ice and Water. These hives will engulf my entire body, every part of my skin will be smothered. I can sweat buckets for some odd reason but it's not enough obviously...The Prickly Heat Sensation is just as miserable as the hives, PHS really sucks cause I look like a crckhead when it begins...this condition has turned me into a rather reclusive human.

Here are 2 older pics of what the hives look like...I have confused majority of Doctors in Hospitals throughout our Country, they have never heard of cholinergic urticaria with acquired generalized hypohidrosis and ask me to educate them even though I only know what I know myself plus Googlin' it.

It took me roughly 2 years to correctly self-diagnosis myself since Doctors couldn't, I even went to the Mayo Clinic.


939dc2f8-b270-4c2a-926c-8fdd1f21a57e_zpsa0c4e783.jpg

IMG_20131203_120916_zpse3bfe495.jpg


I am also looking for a Dermatologist/Allergist to assist me with Authenticating my Self-Diagnosis then those files will be presented to the SSA to hope they will understand why causing emotional distress isn't safe.
 

cherrycakes

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Yea most of the time you have to get to a specialist to get a proper diagnosis, unfortunately
 

Tripster

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Yea most of the time you have to get to a specialist to get a proper diagnosis, unfortunately

Unfortunately the waiting time to see one can take upwards of a year as well. I have blood work tests done and oh my I am completely healthy...wait what? I have tried to get appointments but so many factors limit me to actually leavin the comfort of my shelter...I can't be running around town to go see Docs cause the outside/inside fucks me up. I don't have money for these Docs to come to my house which sucks.
 

Tripster

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you might need to find a representative or SSI attorney, here is an article with a link to representatives by state, some will work pro bono as well.
http://www.disabilitysecrets.com/assistance.html

I am going to see if I can go through the same Attorney who got me SSI, this attorney won my case and I had my check the next month cause I had all the medical documents plus proof that I wasn't workin.
 

Ld3441

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Good luck Tripster.
I will keep you in my thoughts and prayers.
 

Zombiewoof

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On a side note, My Doctor moved and so the clinic I saw him at only had a few Doctors to choose from, I chose the first Doctor that would see me so I could get my medications refilled. I should preface this that I only see Internists, not GP's, I'm not a young man anymore and long ago realized I wasn't an expectant mother or a small child with a cold. Anyway, I have had several maladies that have required attention and have diagnosed them myself BEFORE going to see this great Medical wizard, only too have to argue the cause and actually affliction. While I sit here and listen to him misdiagnose the problem, write a prescription and then in a follow up visit tell me that what I had told him was correct without admitting it, like he thought of it and realized a correct treatment. My Sister is a surgical Nurse, and too this day, much to the chagrin of her personal Doctor, mostly refuses to do preliminary testing for normal age related illnesses. Her reasoning after 40 years as a surgical Oncology Nurse is, "Most of these guy don't know much outside of what they do, or deal with everyday". Just because somebody is a Doctor doesn't mean they know EVERYTHING. While I do respect the Medical profession, I don't necessarily believe, nor trust EVERYTHING they say. Call me paranoid, but having gone to one Doctor for many years, then have another treat me and diagnose me completely differently tells me something, money talks.
 
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allby

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I wish I could help but at the moment I'm fighting my own battle with them. I wish you well
 

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